My Online Memorial "30 Stories of Life Before Disability" #JulesStories

Transforming from an independent, able-bodied working gal into a dependent, unemployed disabled person has been the most traumatic experience of my life. Worse than chemo. Worse than surgery. Worse than anything.

At least during those experiences, I knew they'd be over in a finite amount of time. They would end, and I'd either live or die. 

This. This has been the biggest mind-fuck of all. I kept thinking over and over again that I would get back to my old self, or close to it. So many times, I used the analogy of trying to swim back to shore. For years, I kept swimming toward a shore that seemed to get further away instead of closer. 

It was only this summer that I realized that I wasn't getting any closer to that shore of my previous life because I would never, ever get there.

Instead, I was marooned on an island for the Disabled. It's been the most humbling and eye-opening experience of my life.

When I felt like I couldn't go on this past summer, it was because I couldn't go on WITH THAT SAME OUTLOOK/PERSPECTIVE/PERSONALITY of the able-bodied person I was. I had to let her go. And embrace the outlook/perspective/personality of my newly Disabled Self. That's the only way to get through this.

I felt like I had to honor the woman I used to be before I let her go. So I wrote 30 stories from my able-bodied life leading up to 2013. Here are links to each post

Photo #1 I was miserable when I was hot

Photo #2 I felt like an alien

Photo #3 I like being aggressive

Photo #4 I hate the drug prednisone

Photo #5 I so weird

Photo #6 I lived in Lake Placid

Photo #7 I worked on a kibbutz

Photo #8 He wanted to buy me

Photo #9 I visited concentration camps in Poland

Photo #10 I went to grad school

Photo #11 I was a disco angel

Photo #12 I've always been a mama

Photo #13 I was one of the guys

Photo #14 I went to Costa Rica alone

Photo #15 I lived in NYC on 9/11

Photo #16 I loved being slutty

Photo #17 I landed my dream job

Photo #18 I was on the Today Show

Photo #19 I got a tattoo in Brazil 

Photo #20 I was an awful dater

Photo #21 I jumped out of a plane

Photo #22 I was on Sesame Street

Photo #23 I started my business

Photo #24 I worked for Dr. Oz

Photo #25 I became an auntie

Photo #26 I spoke at conferences

Photo #27 I went to the White House

Photo #28 I published a cookbook

Photo #29 I got melanoma

Photo #30 I moved to California

Thanks for reading this far! I'll be sharing more stories in the near future. Right now I'm doing everything I can to prevent the government from repealing the Affordable Care Act so I can stay covered and alive! 

Stay tuned for the next batch of stories.... 

Much love,