I'm wigging out 6.13.19

I'm wigging out 6.13.19

I couldn’t remember if I’d given myself an IV bag last night. It was completely blank. I knew I must have because I could feel it in my body.

But I couldn’t recall doing it that day. Do you know what helped me remember?

I remembered writing in here that I was in bed giving myself a bag. Then I started to remember other details.

I think I’m starting to get super scared about my colonoscopy next week.

You’d think it would get easier as I get further away from the original diagnosis.

But it doesn’t. The fear grows. What if it’s my turn next? I can’t help think.

My friend that had Stage 4 cancer last summer got bad news about her blood work. I wish they could track my blood work for ovarian cancer. But I never had increased CA-125 levels in the first place.

My dad is…I don’t know. He had a “good day” yesterday. He had to go to the hospital for his infusion and it took hours and hours. But mom was so glad he wasn’t having his nose bleeds (they have him on such high doses of blood thinners that he gets them now - they’ve got to control the clot problem since they can’t operate on him due to the breathing issues). And he wasn’t coughing as much either.

I said: this is what happens when you’re medically fragile, mom.

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It was a magical weekend 5.20.19

It was a magical weekend 5.20.19

did it! I had a fantastic weekend and felt ok physically and mentally!

This is a HUGE relief. If I couldn’t do a short road trip in my area, I was afraid my world would shrink even more than it already has.

Just thinking about that terrifies. I had a lot of safety precautions in place, just in case.

But all went well.

On the drive home, I was actually sad to be heading back. I didn’t care that I was sitting in traffic in Tacoma! That’s how happy I was to be out of the cocoon.

Out of respect for the community that has graciously welcomed me into their fold, I won’t be sharing any specific details about what went on during the weekend.

What I can share is that it was an incredibly healing experience. This photo was taken after I did an ancient ritual. My entire outfit is soaked in sweat here! And I’m very pale, but I did remarkably well given the situation. (Women wear skirts so I borrowed my friend’s skirt that is too short for her now!)

Let’s see if I can share a little bit without disclosing too much.

In 2017, I wrote a note for my 2018 goals which were: go to an improv class (check!), find a spiritual community that focuses on health (OMG CHECK CHECK CHECK this past weekend!), and figure out how to travel, even close by.

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I am a lucky lady 5.12.19

I am a lucky lady 5.12.19

I don’t have much time to write today! I dozed a lot today and then spent time with the kids. Now that the weather has cooled down, I want to walk outside for at least part of my walk.

It’s so interesting to me how I feel about Mother’s Day NOW versus how I felt about it in prior years.

It’s not an easy thing for a woman in our culture to opt out of having kids. Mine has half opting and half medical reasons.

Before I had huge tumors in my ovaries at age 41, I could have gone either way.

The weird thing is I always thought I wanted kids. I never imagined being married when I was younger. But I always imagined doing cool things with kids! Somehow that vision ended up becoming reality!

It’s hard to admit in this culture that I’m very happy about how this area of my life worked out. It’s gotten a lot easier for me to be honest about this thanks to the millennials who are so open about so many things. They’re so real about the pros and cons of becoming a parent.

I feel like my generation was the last one to do things by default. I felt SO much shame for

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I don't like goat milk 5.3.19

I don't like goat milk 5.3.19

I’m working so hard on figuring out what I can eat and what I can’t eat. That’s why it’s especially irritating when a doctor I barely know acts so suspicious about whether I’m trying new foods.

OF COURSE I AM. Geezus.

I got a little overzealous last night and downed some carrot juice and devoured half of this non-dairy cheesecake (it’s not that big, but still, for me I must do small quantities slowly for pretty much anything) from Whole Foods that I bought when I picked up the goat milk.

Today, I’m paying for it. I don’t know which one is causing the trouble. Maybe neither. Maybe both.

This is what happens when I get a little cocky - or I’m just starving - and the pain hasn’t been so bad. I like the cheesecake (well, like might be a strong word) but I like how it makes me feel like I ATE SOMETHING. Liquids just don’t cut it! And three eggs is all right…I don’t think there is going to be any eggs today, unfortunately.

It’s astounding to me what the medical world requires in order for me to get more nutrients via my IV. It would be so helpful - and way less painful - if I could get more through my blood rather than forcing my gut to try and absorb things that may or may not be aggravating it. Nope. They act like I’m asking for a morphine drip. While launching into outer space.

Pain is so strange - and for the record, I have really high pain tolerance, always have, just for fun I’d play soccer in high school without shin guards and now…? - when I’m not in pain, I feel like I can be productive! Catch up on computer work!

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Food scares me 4.8.19

Food scares me 4.8.19

There was a guy eating French fries and drinking a milkshake near my friend and I while we got tea at Whole Foods yesterday. He did it so casually. There was another woman eating her salad while staring at her phone. I can’t help but stare.

I’m still thinking about their casual eating long after they probably have.

What is it like to not be able to eat hardly anything? I’m sure people wonder. I haven’t shared much about it mostly because it’s incredibly painful.

For anyone new to my life, I used to be a cooking teacher and nutrition educator. I spent years developing recipes, menus, and curriculum for adults and kids.

I used to spend all day thinking about food, buying it, preparing it, teaching it, and eating it.

Now? I spend all day thinking about the few foods I can eat and which ones I can get away with it.

The saddest part about all this is that I actually love healthy food.

I grew up in a mostly meat and potatoes household like most Americans in the 70s and 80s. My dad has always been a health-nut so we moved over to chicken and fish earlier than most. His parents - my grandparents - were into juicing. My Bubby, his mom and the woman we all got the Lynch Syndrome from (thanks Bubby!) made her own yogurt.

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