I am scared for TPN 4.14.19

I am scared for TPN 4.14.19

I don’t take a lot of photos when the pain is really bad. I also don’t like taking a lot of photos when my weight is down. It’s sunk down several times over the last couple of years but I managed to pull it back up.

The reason I took all those professional photos last year was because I liked my weight then and worried I wouldn’t be able to keep it there.

This could change when I’m on TPN (Total parenteral nutrition “is a method of feeding that bypasses the gastrointestinal tract. Fluids are given into a vein to provide most of the nutrients the body needs. The method is used when a person cannot or should not receive feedings or fluids by mouth.” - Google)

One of my registered dietitian friends - I have a lot of them because I’ve been in the field for so many years - has been recommending TPN for a long time because it bypasses the gut and gives nutrients entirely through the IV to the blood.

It has sounded terrifying for the past year or so when she has been advocating for it. The main risk is liver toxicity from long-term use. It could mean blowing out my PICC line more often as well. I’m sure there are other risks, but I don’t do a lot of medical research on the Internet anymore.

For two reasons:

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Food scares me 4.8.19

Food scares me 4.8.19

There was a guy eating French fries and drinking a milkshake near my friend and I while we got tea at Whole Foods yesterday. He did it so casually. There was another woman eating her salad while staring at her phone. I can’t help but stare.

I’m still thinking about their casual eating long after they probably have.

What is it like to not be able to eat hardly anything? I’m sure people wonder. I haven’t shared much about it mostly because it’s incredibly painful.

For anyone new to my life, I used to be a cooking teacher and nutrition educator. I spent years developing recipes, menus, and curriculum for adults and kids.

I used to spend all day thinking about food, buying it, preparing it, teaching it, and eating it.

Now? I spend all day thinking about the few foods I can eat and which ones I can get away with it.

The saddest part about all this is that I actually love healthy food.

I grew up in a mostly meat and potatoes household like most Americans in the 70s and 80s. My dad has always been a health-nut so we moved over to chicken and fish earlier than most. His parents - my grandparents - were into juicing. My Bubby, his mom and the woman we all got the Lynch Syndrome from (thanks Bubby!) made her own yogurt.

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I went to the dentist 4.3.19

I went to the dentist 4.3.19

It happened.

I knew it was coming. I ran into an old friend - we’ve known each other so long I can’t remember when we met, adolescence - and I didn’t get the “you look good.”

Granted, as soon as she said “Julie!” I fell into her arms like a kid. I just feel so safe with her, and I do things like that now, not necessarily socially acceptable “normal” things.

I chatted with her for a few minutes and felt so happy I got to see her and her lovely husband and kid.

They said nothing about my outside which is unusual these days.

When I got home, I looked in the mirror and realized that my hips are gone. I mean, they are still there! But not the way they’ve been for most of my adult life. I’ve always had hips! My frame is noticeable different.

This is a tough one for me to talk about because so many people struggle with body image issues and consider weight loss a “good” thing.

But for me? Shrinking is not the goal!

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Something is not right 4.2.19

Something is not right 4.2.19

The pain was bad last night. I hate when the pain is bad throughout the night. I wake up a lot and don’t sleep well. I tried eating four eggs yesterday and it did NOT go well. That’s the first time I’ve tried to eat four eggs at in one day since before Feb 15 or thereabouts. That’s when I left for San Diego.

I thought since because I had an extra visceral massage on Sunday that maybe I could get away with it. Also, I was hungry! I was super hungry yesterday which is always a good sign. Today, no appetite. Don’t want to put anything in my stomach. I should have done two bags of IV fluids yesterday - that would have helped - but I ran out of tubing and had only one left. I wanted to save it for TODAY’S visceral massage with Caroline. We discovered that if I give myself a bag while she works on my belly then she’s able to move my tissue more easily and open things up.

Visceral massage, if you’re wondering, is when specially trained massage therapists move the intestines around by massaging the belly and the back. It can be very subtle work - they are trained to know how to “pull apart” the intestines that are sticking together most often due

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