I am hungry 2.27.19

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2/27/19 Tired and hungry

Today I had a doctor appointment at 2pm. When I have a doctor appointment, I rarely eat beforehand. Which seems like a bad idea, looking from the outside in. But if I eat at the wrong time, then I’m stuck in the bathroom, or running back and forth, for a couple of hours. Unless I am traveling, I will rarely get out of bed the requisite two to three hours ahead of departure time in order to eat broth and eggs. Plus, I have so little I can eat, if I eat too early in the day, then I will want more later in the day. I’ve never been super hungry the first half of the day - my brain, appetite and body have always been on a night owl schedule - but now, it’s worse than ever.

After my disastrous appointment today where the doctor lied to my face so badly - I’ve never seen a grown man literally squirming in his seat like this guy. I keep being told that they won’t order labs - I cried for awhile in my car. Then called Megan. Then got a couple of doughnuts so I could eat the frosting off. This used to be a once in awhile thing. But lately…it’s not good how often I do this instead of real food. What am I supposed to do? I’m starving so much of the time and there is only so many juices and broths that cut the edge. This horribly sugary “snack” can’t be good for cancer prevention. But I’m so tired. So on edge. Overwhelmed. Tired. Did I say tired? Yeah, my estrogen is so low and I’ve eaten so little for 2 weeks that my brain isn’t thinking so sharp today.

I’m kind of forcing myself to write here. If I don’t do something like this - keep something like this tethering me to the real world and do a tangible task that I can successfully complete - I think I’m going to really lose my mind.

Yesterday when I got home from another appointment my mom reminded me that I had called her and cried earlier that day. I had no memory of it. Well, it was a fuzzy memory. Kind of like a drunken night from a few weeks ago that someone reminds you about. But I had no tangible feelings about the phone call. No idea what I said to her but do remember that I was crying while talking to her.

That’s not some unusual thing, of course, so my brain pulled up a memory of it. Who knows if it was the actual memory of yesterday’s call.

I know it’s scary to read this sort of thing. To watch some deteriorate before your eyes. Watch the system drag them under water, gasp as the person doesn’t come up for air for far too long, only to watch them burst through the surface, terror in their eyes, realizing that their chances of survival keep dropping.

I’m going to get some IV nutrients from ND which is quite expensive but luckily, I have far away donor willing to do it. We’ve never met in person! How amazing is that?

I will try to go get some real food in my stomach. It’s just so lovely to not be in pain, that I dread eating now. I know it’s so much work to get it out and a lot of pain in between, it’s gotten to the point where I connect eggs to pain now. I really, really can’t lose eggs. That will be very, very bad if I do.

Much love,

Jules